Information leaflets in English
| Information in plain language by Thea van de Velde & Ida Bakker from Contact Group Triple-X Syndrome. written in Dutch, translated in English in March 2007. |
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The information in this leaflet has been gathered from various sources, such as publications of doctors and research workers who have studied and described this syndrome. The personal experiences of parents of girls with Triple-X and women who have Triple-X themselves however were just as important in writing this article. |
| The text has been verified by prof. C. Schrander, professor of clinical genetics, Academic Hospital Maastricht (the Netherlands). |
| Click on the link underneath to download the latest update (september 2007) |
| 28-12-2009 Unique, the rare chromosome disorder support group UK, has created a new and extended leaflet on Triple X Syndrome. It was recently published on their website. Click on this link to download this leaflet |
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02-02-2011 Kathleen Erskine, a graduate student in the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College conducted a study to identify the important aspects of 47, XXX/ 3X/ Triple X/ Trisomy X to discuss with girls when they first learn about their Trisomy X diagnosis. The end result of this study is this educational booklet for parents to give their daughter when they first tell her about Trisomy X. Guide to Trisomy X Available at www.genetic.org |
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