Follow up Research Project 2012
Susan Howell, Genetic Counselor who works with Dr. Nicole Tartaglia at the eXtraordinarY Kids Clinic in Denver, CO does a follow up study to Kali Messer's research survey.

Many families expressed an interest in learning more about Triple X syndrome.

They are currently collaborating with a research project that they hope will lead to great advances in our understanding of triple X syndrome but also hope that this research will lead to treatments for Triple X syndrome.
This current research study, ongoing at the M.I.N.D. Institute in Sacramento, California, includes girls with Triple X syndrome ages 8 to 14.

The study is looking at how the brain functions during tasks using both language and visuospatial skills, by performing a functional MRI while conducting certain activities (games, puzzles, computer games, etc).
The study is encouraging to their clinic, as it is identifying the areas of the brain which are impaired during these tasks for the purpose of trying to develop interventions to help their patients overcome these impairments!

If your daughter is between the ages of 8 and 14 and you are possibly interested in participating, please contact the study coordinator by calling 916-703-0408 or emailing them at
They do have some funding for travel as well participants receive $60 in gift cards as a token of appreciation.

More info about The Children's Hospital Colorado at

[English section] [Studies]