Discussing Diagnosis with your Child 11-2012
X and Y Chromosome Variation Study

This is an important study being conducted by a graduate student working in conjunction with the eXtraordinarY Kids Clinic at Children's Hospital Colorado in Denver.

Appeal from researcher:
I am a Genetic Counseling Graduate Student at the University of Colorado Denver.
My Capstone Research Project aims to develop a brochure for parents who are considering discussing their child's diagnosis of an X or Y chromosome variation with him or her for the first time.
As you may agree, I have found that information and resources regarding this topic are quite limited.
It is important that the brochure contain accurate and helpful information for parents.
Therefore, I have developed a survey to collect information about real experiences discussing the diagnosis and possibly include this information in the brochure.

If you are a parent of a child with an X or Y chromosome variation, I am interested in learning about your experience discussing the diagnosis with your child for the first time.

If you are personally diagnosed with an X or Y chromosome variation, I hope to gather information about your experience learning about your diagnosis.

To participate in the survey, please click on this link.
The survey should take approximately 15-20 minutes of your time. Participation is completely voluntary and anonymous.

Anna Dennis
Genetic Counseling Graduate Student
University of Colorado Denver

This study is being conducted under the supervision of Dr. Nicole Tartaglia.

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