INFORMATIVE ORGANISATIONS / SUPPORT GROUPS
| 28-08-2011 Triple X Syndrome Support Australia Contact: The Association of Genetic Support of Australasia 66 Albion St Surry Hills NSW 2011 Ph: 02 9211 1462 Email: info@agsa-geneticsupport.org.au Website: www.agsa-geneticsupport.org.au |
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NEW in 2011: DANISH Parent Support Group Triple-x foreningen www.triple-x.dk Initiated by mrs. Anneli Frandsen Founding meeting 14th. May 2011 13:00 to 15:00. It's aim is to gather information about trisomy X (47, xxx), support to parents and to triple-x girls, and to promote interest in research in the area. |
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| For women with triple-x, parents of triple x girls and persons working with or interested in the triple-x syndrome. The General Assembly held at Hareskovens Lilleskole Skovbovænget 124, 2750 Ballerup. We hope to see many people there. Please mail your registration to mail@triple-x.dk To learn more about Triple-X syndrome, or join the association please contact us at: mail@triple-x.dk |
| Informative Dutch website about genetics, genetic diseases, pregnancy and child wish. www.erfelijkheid.nl |
| Informative Dutch website about genetics and diseases. www.vsop.nl |
| American website with interesting articles, for instance: 1. 47,XXX, What is the prognosis? 2. Psychosocial Competence of Unselected Young Adults With Sex Chromosome Abnormalities. 3. Transition From Adolescence to Early Adulthood: Adaptation and Psychiatric Status of Women With 47, XXX. 4. Intelligence and Achievement in Children With Extra X Aneuploidy. www.triplo-x.org |
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| Information in English about all kind of chromosome defects. www.chromosomehelpstation.com |
| English website of Unique, Rare Chromosome Disorder Support Group www.rarechromo.org |
| Canadian website of KS&A (Klinefelter Syndrome and Associates, Inc. or Knowledge Support & Action) about Klinefelter Syndrome and other related sex chromosome disorders. www.genetic.org |
| Information for XXX girls and their families from the American “Klinefelter Syndrome Support Group” www.klinefeltersyndrome.org |
| Website and support group in the German language for all kinds of chromosome disorders. www.leona-ev.de |
| Website of the Danish Turner Center, in the English, German, French and Danish language. It contains amongst others: 1. Short description of the Triple-X syndrome 2. Triple-X Females, an oriëntation 3. Sex Chromosome Abnormalities Found Among 34,910 Newborn Children: Results From a 13-Year Incidence Study in Århus, Denmark 4. Follow-Up of 25 Unselected Children With Sex Chromosome Abnormalities to Age 12 www.turnercenteret.dk |
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| International Coalition of Advocacy, Research and Healthcare Organizations which represents millions of people with genetic conditions and their interests. www.geneticalliance.org |
| English website of “the National Organisation of Rare Disorders” about all kinds of genetic diseases, also the Triple X Syndrome. www.rarediseases.org |
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| English website of "Contact A Family' with the article:Triple X Syndrome www.cafamily.org |
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| “Parental News Exchange Group” groups.yahoo.com |
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| Homepage of Helen Clements who set up the international “Triple X Parent Support Group” triplexsupportgroup.homestead.com |
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| Website of the “Naturopathic Medicine Network”, with a messageboard about 47,XXX. pandamedicine.com |
| American website (”Symptoms, Diseases and Risks”) with information for patients and by patients, also about Triple-x syndrome. This website contains several Forums(also 47,XXX) for all kinds of genetic conditions. www.wrongdiagnosis.com |
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| Website in French, English and other languages of the " VALENTIN A.P.A.C. Association de Porteurs d'Anomalies Chromosomiques " with information on all sorts of genetic conditions www.valentin-apac.org |
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