WHAT'S NEW ON THIS SITE
| 04-03-2010 6th Support Meeting for families of rare chromosome disorders France Saturday April 17, 2010 8.30h-18.30 h la salle Victor Jara, Maison de la Challe, à Éragny sur Oise (95610). |
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28-02-2010 Family Support Meeting Belgium Sunday March 28, 2010 10.30h-17.00h at Technopolis in Mechelen. |
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09-02-2010 Stephanie Scoville is a Physical Therapy Coordinator who works at Clinical Associates of the Finger Lakes. She's the author of this presentation and gave us permission to publish her work on our website. |
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28-02-10 KS&A has stopped collecting responses in order to analyze the data and create the educational booklet. We hope to share the results with you as they become available. 12-01-2010 Invitation to participate in a research study that is being done in conjunction with KS&A by Kathleen Erskine, a graduate student in the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College. |
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| The purpose of this study to identify the important aspects of 47, XXX/ 3X/ Triple X/ Trisomy X to discuss with girls when they first learn about their Trisomy X diagnosis. The end result of this study will be an educational booklet for parents to give their daughters when they first tell her about Trisomy X. |
07-01-2010 Abstract published of the NIMH team’s work comparing the girls with an extra X to the boys with an extra X. It’s also the first published work from Dr. Giedd and Dr. Lenroot addressing neuropsychological function for the girls. |
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28-12-2009 Unique, the rare chromosome disorder support group UK, has created a new and extended leaflet on Triple X Syndrome. It was recently published on their website. Click on this link to view the leaflet |
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17-12-2009 Contact Group Triple X Syndroom wishes all members and visitors of this website a Merry Christmas and a Happy New Year Thea and Ida |
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4-12-2009 NEW Report: Girls with XXX Report now out from the Oxford Extra Sex Chromosome Study This study included only families from the UK, 55 XXX girls participated. Funded by: Newlife Foundation In collaboration with UNIQUE |
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4-12-2009 Triple X Syndrome Community You have to join this community to be able to post messages on its forum or update its information. |
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27-11-2009 Info- and Support, Belgium A week ago the 3th Meetingday was held in Belgium. This time there were 3 guestspeakers present including 17 families. A few of them came from the Netherlands. Click on this link for a short resumé |
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23-11-2009 The story of Alexandra and her daughter Céline, born in 2009. Alexandra and Céline are living in the Middle East. Click on the link below to read Alexandra's story. |
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22-11-2009 Help KS&A Plan the 2010 Families' Conference They are beginning to plan the 2010 KS&A Families’ Conference. They would appreciate your input so they can make this the best conference ever. |
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| Please take a moment to fill out this very quick and easy survey, and share your preferences for what you believe makes a comfortable, affordable conference. Just click this link to go to the survey Jim Moore Executive Director |
22-11-2009 Occasionally KS&A supports the activities of other organizations. The eXtraordinarY Kids Clinic at Children’s Hospital in Denver is the world’s only multidisciplinary clinic dedicated to serving individuals who have X and Y chromosome variations and their families. |
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| In recognition that so many of the kids they have seen in clinic are talented artists, Dr. Tartaglia and the eXtraordinarY Kids Clinic at TCH are holding a fundraiser Art Contest for the X&Y children and adults. The winning artwork will then be featured on calendars, notecards, and other items that will give credit to the artist and be sold and given away to families to help support the clinic. Click this link to view the art contest Natalie Ayari eXtraordinarY Kids Clinic, The Children’s Hospital |
17-11-2009 Triple X Syndrome is on Facebook Sign up for Facebook to connect with Triple X Syndrome This is a group for parents, parents-to-be, other family members, and the women themselves to share regarding the diagnosis of an extra X. |
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29-10-2009 4 th Familyday Valentin A.P.A.C. France 28 november 2009 10.00h-18.00h l'Espace des Calandres à Éragny sur Oise (95) |
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| More information in French |
18-10-2009 3th Meetingday Belgium November 21, 2009 This day is organised by UZ Leuven. |
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| Two speakers will be present and parents of XXX girls have the opportunity to meet and share their experiences. More info in Dutch |
13-10-2009 Dr Sophie van Rijn, PhD who works in Leiden University (the Netherlands) and did a lot of research on the Klinefelter syndrome, has started a new study which includes XXY, XO and XXX. "Factors at risk in development of social skills within children (Cognition and Behavior)". KS&A is supporting this study. More info in Dutch Both our daughters will take part in this study. |
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08-10-2009 New article published Aug. 2009: "Prenatal diagnosis and prognosis of triple X syndrome: 47, XXX" written by Ben Hamouda H, et al, J Gynecol Obstet Biol Reprod (Paris) (2009), doi:10.1016/j.jgyn.2009.08.003 Service de pédiatrie, Hôpital Universitaire Tahar Sfar 5111 Mahdia- Tunisie. |
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06-10-2009 KS&A is moving its day-to-day operations to Aurora, CO. The principle reason for this is that the executive director lives in Colorado. Rather than continue coordinating his operational activities from two locations, Aurora, CO, and Coto de Caza, CA, it made sense to streamline their operations a bit and consolidate at one location. |
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| The move is a work in progress. Over the next week or so they hope to complete the transition. KS&A’s new mailing address: KS&A P.O. Box 4601047 Aurora, CO 80046-1047 The primary phone number will be: 303-400-9040 Fax: 303-400-3454 The corporation’s primary address will be unchanged: 11 Keats Court, Coto de Caza, CA 92679. Colorado’s office KS&A will function as a satellite of the California office. |
09-09-2009 There is a third speaker for the September 26th networking event: Professor Debra Tupe of Columbia University will talk about Occupational Therapy and Trisomy X. She will share the latest research results. |
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| If you plan to attend and have not yet registered, please do so soon. More info below. |
03-09-2009 Help ashed by Helen Clements Helen founded the Triple X Support Group UK in 1997. |
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| She's looking to write the next newsletter on adult and teenagers stories. If you would like to write something for this edition, please send it to her email address She thinks it would be interesting for parents of younger children to listen to how Triple X has affected life as you grew up, your achievements and pitfalls. Is there anyone who attended the KS&A conference that would be prepared to share the experience with others, a summary of events would be great for the newsletters. It's a struggle to find stories and information for this edition so any help would be gratefully received. |
02-09-2009 There were video tapes made for all of the major speaker presentations at the LA conference. These tapes are presently being edited and will become available later this fall. If you are interested, please send an email to KS&A |
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| Tapes from previous conferences are available in the KS&A store. |
27-08-2009 More accurate info on the Trisomy X Event !!! Metropolitan NY Area Trisomy X Networking Event for Moms, Dads, their daughters and other interested family members and friends. SWEETS: Sensational Women Extraordinary Girls Expressing Trisomy X Support Group |
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| Saturday, September 26, 2009: 10 am to 2 pm First Presbyterian Church, 2880 Crompond Road, Yorktown Heights, NY 10598 (45 miles north of NYC) |
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| Featuring presentations by Dr. Jay Lucker and Ms. Lennie Wilson, group discussions and networking. Please send the Registration Form to Sandy |
21-08-2009 More accurate details above!!! Trisomy X Event NY September 26th, 2009 The planning of this meeting in Westchester County, less than an hour's drive north from NYC, is almost finalized. The guest speaker will be Dr. Jay Lucker, the Washington DC-based audiologist/speech pathologist who specializes in auditory information processing. He has collected data on 18 Trisomy X girls. This is a wonderful opportunity to hear his presentation and ask questions. For more details of this event please contact Sandy |
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15-08-2009 The story of Cambria, born in Newport, Rhode Island. She was diagnosed at age 7 months and lives in Germany with her family. Her mother Micah Cummings wrote this story. Cambria is now 1 years and 10 months old. |
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21-07-2009 The conference schedule, orientation materials, info about an education project, research recruitment and presenters’ topics and biographies is posted on KS&A’s website |
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09-07-2009 Lily's mother wrote a beautiful update about her daughter, in English and in Spanish. Lily is born in Chili, adopted when she was almost 2 years old and now lives in Mallorca. |
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03-07-2009 Unique, the Rare Chromosome Disorder Support Group from the U.K. has published a children's cartoon-style book about chromosomes and chromosome disorders. It's a large file so they ask to please be patient. Click her to read the book. |
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03-07-2009 KS&A has a longstanding tradition of supporting qualified researchers in their efforts to recruit participants for their studies. Your willingness to contribute to research is crucial to helping KS&A fulfill its mission to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives. |
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| Recently the research committee approved several studies. They will soon send announcements about each of these studies and invite you to consider contributing to their success. They will also update their website to include information about each of these studies. Approved studies are posted here: www.genetic.org |
02-07-2009 We are very proud to announce the article, written by Drs. Maarten Otter with help from Prof. C. Schrander and Prof. L. Curfs in Maastricht, is published on July 1, 2009. "Triple X syndrome: a review of the literature" |
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| We hope to translate this review in Dutch soon. Our thanks goes to all autors, especially Drs. Maarten Otter for all the input and effort on behalf of XXX. This article can be found to download at: www.nature.com |
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Best wishes, Thea van de Velde en Ida Bakker Contactgroep Triple X Syndroom |
30-06-2009 The Trisomy X –specific family conference speakers (2009) are: |
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| Mina J. Avery, M.Ed "Educational Outcomes" Donald R. Bear, Ph.D. Director E.L . Cord Foundation Center for Learning and Literacy "Literacy & Reading" Marit Bierman, Ph.D standing in for Sophie Van Rijn, PhD "Social Skills Training"(Social Cognition and Emotional Regulation) Susan Howell, M.S. C.G.C. "Disclosure Matters" Jay R. Lucker, Ed.D. CCC-A/SLP Certified Audiologist "Auditory Perception & Processing" Auditory Processing Issues Nicole Tartaglia, M.D."Medical and Developmental Outcomes" Rebecca Wilson, Psy.D."Psychological Outcomes" Andrew Yellen, M.D."Social Isolation" Audrey L. Zapletal, MS, OTR/L Certified Occupational Therapist "Sensory Processing & Integration" Sensory Processing Issues |
18-06-2009 Through the internet we met Micah Cummings. Micah is an american woman, lives in Germany, is a photographer and runs a family with 3 kids and has her own website. On this blog she also tells about her daughter who has XXX. Micah agreed in writing her personal story for our website. We keep you informed. |
18-06-2009 Triple X Meetingday in the Netherlands On June 13, our third Family Meeting was held in Bennekom, Holland. There were 18 families present, among them 11 Triple X females in the age 0-38 years old. Click on this link for a summary of this day. |
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28-05-2009 List of speakers at the LA Conference has been added. |
23-05-2009 The story of Stella, a 19 year old XXX woman who lives in Scotland. Stella knows she has an extra x since she was 8 years old. |
Cathy's Middle school transition IEP, May 2009 |
17-04-2009 2009 “I Love L.A.” Families Conference For x and y chromosome variations, the first ever joint conference between AAKSIS, KS&A and the XXYY Project. July 24 through 26 Mount St. Mary’s College, Los Angeles, CA Registration NOW OPEN! |
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| Register through KS&A's website and REGONLINE'S secure connection. EARLY REGISTRATION DEADLINE: may 31, 2009 (after which rates increase) To register and for more information go to www.genetic.org |
14-04-2009 University of Nevada, Reno Educational Development In Individuals with Extra X Chromosomes A thesis submitted in partial fulfillment of the requirements for the degree of Master of Education in Literacy Studies. By Mina Avery and Dr. Donald R. Bear/Thesis Advisor December, 2008 |
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14-04-2009 2009 “I Love L.A.” Families Conference For x and y chromosome variations, the first ever joint conference between AAKSIS, KS&A and the XXYY Project. July 24 through 26 Mount St. Mary’s College, Los Angeles, CA More info at www.genetic.org Registration Opening Soon! |
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03-04-2009 Triple-X Family Meetingday June 13, 2009 from 11.00h-16.00h De Kraatsschool in Bennekom (Gld) The Netherlands |
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| 11.00h Welcome 11.45h "The Triple X Syndrome", a presentation by drs M. Otter 12.15h "Diagnose Triple X, do you tell or not" by Thea van de Velde and Ida Bakker of Contactgroep Triple X Syndroom 13.00h Lunch 14.15h Language-Speechproblems and problems within short term memory and its consequences on socially emotional development", a presentation by drs C. Engbers and drs. H. van der Schoot (medical pedagogy) |
26-03-2009 Bérénice, a 17 year old Triple X female from Belgium made it to the semifinal of "TOPMODEL BELGIUM". Congratulations ******************** |
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| Her story was published on our website since july 2004 and her mother proudly told us that Bérénice recently was casted out of many participants to take part of this modelcontest which will be held on May 15-16, 2009 More info, mostly in French, on www.topmodelbelgium.be |
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25-03-2009 Help asked by Helen Clements Helen founded the Triple X Support Group UK in 1997. She would like to make a start on producing the Next Newsletter and thought it might be an idea to try and put together a newsletter with stories from teenagers and adults. |
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| If you would like to contribute something, please send it to her on her email address by the end of April 2009. |
20-03-2009 3th Meetingday The Netherlands On Saturday June 13, 2009 there will be an opportunaty to meet other people/families dealing with Triple X. This event will be held in Bennekom (Gld). This summer our Contactgroup/Website celebrates its '5 th birthday' so it would be nice to share this with our members. More details will follow. Thea van de Velde and Ida Bakker |
01-03-09 The story of Emilie. Emilie lives in the USA and was diagnosed in 2008. Click on the link below to read her story. |
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20-02-2009 2009 "I Love LA" Families’ Conference July 24, 25 & 26, 2009 Mount St. Mary’s College - Chalon Campus in Brentwood Hills, CA |
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| For the first time, AAKSIS, the XXYY Project and KS&A will work together to put on a joint conference! More information to come at www.genetic.org |
21-01-2009 Review Autumn Festivity for XXX girls in Germany translated in Spanish. |
15-12-2008 Contact Group Triple X Syndroom wishes all members and visitors of this website a Merry Christmas and a Happy New Year. Thea van de Velde and Ida Bakker |
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2-12-2008 Overview Unique conference 2008 Rare Chromosome Disorder Support Group On page 7 of this report you can find a summary of the workshop "Sex Chromosome Aneuploidies". |
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| This workshop was presented by Victoria Leggett, Department of Experimental Psychology, Oxford, Dr Debbie Shears, Clinical Geneticist and Vishakha Tripathi, Genetic Counsellor. |
25-11-2008 Report Autumn Festivity for XXX girls in Germany Review and impressions of autumn festivity and exchange of experiences for families with XXX-girls on 20th of September 2008 at genetikum in Neu-Ulm |
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16-11-2008 Support Meeting France Next year, on May 30, the 8th Meetingday for individuals with Klinefelter-, Turner-, XYY or XXX Syndrome will be held in France. More information in French |
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8-10-2008 Educational Development Study As we mentioned earlier Mina Avery is writing a thesis on the educational development of Triple X girls. She's down to the wire on data collection and desperately need participants. Simply go to www.anextrakiss.com and follow the directions. You read and sign consent forms, give your daughter a brief spelling test, copy her standardized test scores and mail the whole package to the Literacy and Learning Center at the University of Nevada, Reno. |
11-09-2008 The story of Katie Katie was born in 1968, dx by amnio. From birth untill she was 18 years old she took part in the Toronto Study. More info in this article written in 1983 and this article from 1995. She is the proud mother of a beautiful baby girl. |
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12th Family Conference Weekend UK Rare Chromosome Disorder Support Group Friday 31st October –Sunday 2nd November 2008 The Daventry Hotel Sedgemoor Way Daventry Northamptonshire NN11 0SG England More info at www.rarechromo.org Main Conference Programme |
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3-9-2008 Translation of the Denver Conference Report into Spanish. |
Unfortunately this meeting was cancelled New York Tri-State Regional Support Group For X+/Y+ Chromosomal Disorders For families and individuals of all ages affected by XXY (Klinefelter Syndrome),XXX (Trisomy X), XYY, and variations. 10 am to 3:30 pm (registration 9:30 am) Sunday, September 21, 2008 The Wang Center Stony Brook University Stony Brook, NY 11794 |
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14-8-2008 Follow-up story of Linda written by her mother Thea van de Velde. This update was written in July 2007 and recently translated in English. Linda had just turned 9 in April that year. |
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14-8-2008 Mina Avery wrote a summary of the Denver Conference and the story of her XXX daughter Rowena. We want to thank her for all the effort and the opportunity to publish her work on our website. |
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14-8-2008 The DVD’s of the Denver Conference can be ordered within time from KS&A at www.genetic.org |
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02-08-2008 Educational Development in Individuals with Extra X Chromosomes Dr. Donald Bear, director of The Center for Learning and Literacy at the University of Nevada, Reno and student investigator, Mina Avery are conducting a study of the influence of extra X chromosomes on reading development. |
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29-06-2008 Myndi Fitzgerald is putting together a binder of information for the August 2008 Conference in Denver and will be adding a section for personal stories. If you would like to share your son's/daughter’s personal story and/or include a picture of him/her, please forward them to Myndi at the7fitzs@yahoo.com by July 20th. |
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| This was a favorite from prior conferences. Please let Myndi know if you have any questions. We look forward to reading your stories in the binder! Kathryn D. Henry Executive Administrator KS&A |
24-06-2008 We are happy to let you know that Kathi Henry, executive administrator of KS&A, has sent us the KS&A Brochure of this conference. This Brochure includes registration forms, conference agenda and conference rates. It can be downloaded by clicking on the link below. |
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17-06-2008 Triple X Family day in Germany on 20-9-2008 in Neu-Ulm(Bayern). |
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| 17-6-2008 Meeting in France, Spring 2009, for people with Klinefelter-, Turner-, XYY- and Triple X Syndrome. |
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12-06-2008 Swedisch information available The mother of a 4 year old Triple X girl, who's diagnosed recently, created a blog on the internet. She tries to translate information and debate her thoughts on the subject. trippelx.wordpress.com |
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10-06-08 Cathy's mom wrote an update in June 2008, on Cathy's 10th birthday. |
10-06-08 Update on the Family Conference in Denver |
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30-5-2008 The Booklet "Triple X Females, an oriëntation" by Johannes Nielsen from the Turner Center in Danmark is now translated into Spanish. |
16-05-08 Developmental Milestones Everybody is talking about reaching milestones every now and then. Here you can find the normal milestones for children from 0/5 years old. |
Family Meetingday Belgium 2008 On the first day of Summer, June 21, the second Trisomy-X Support Meeting will be held at "Het Dennenhof" restaurant and playground just outside Domein Bokrijk in Genk, Belgium. Visitors from outside Belgium are also welcome. More information about this Meeting Day (so far only in Dutch) on: |
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10-05-2008 The Pre-registration Denver Conference link has been posted on the KS&A website at www.genetic.org |
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06-05-2008 The story of Debby. Debby was born in 1978, lives in The Netherlands and was diagnosed Trisomy-X when she was 28 years old. |
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06-05-2008 The story of Elvira, daughter of Debby. Debby has Trisomy-X. She writes about her pregnancy, the birth and the first months of Elvira's life. |
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02-05-2008 The "Normal Syndrome" Having a child with a chromosome anomaly is scary. What to expect, what will be the effect of the syndrome etc. Most parents start to search for every information they can get hold of. Some of this information will put them at ease, but more likely they will come across a lot of information about worst case scenarios. And ofcourse, all of this information is true, but not for one child or person. A syndrome is a complex of symptoms, none of the persons with this specific syndrome will have them all. Some are affected mildly, some are affected more seriously. And this is also the case with so-called 'normal' babies. I feel that everybody should read this article called the "Normal Syndrome" I found on the internet. I contacted the author and he gave me permission to publish it. Maybe it will put some thoughts into perspective. |
26-04-2008 KS&A Conference in Denver, CO August 8, 9 and 10, 2008 Online pre-registration will be available on the KS&A Website within two weeks. Please be patient while they continue setting up the schedule and registration page. Basic Agenda and list of Speakers at: |
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25-04-2008 Where possible, we changed the links of the books on Books & Literature to Amazon.com, which has an Online Reader. That makes it possible to look inside the book, before one decides to buy it. |
18-04-2008 Little Yellow Book is now available in Spanish. El Librito Amarillo www.rarechromo.org |
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17-04-08 The story of Lily. Lily was born in 1997 in Chile and currently living in Mallorca (Spain) Her story is written by her mother, in English and in Spanish. |
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8-4-2008 The story of Mélijade, a 12 year old Triple X girl who lives in Québec, Canada. Her mother doesn't speak English so she wrote it in French. |
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8-4-2008 Three personal stories published in Spanisch. |
27-03-2008 Unique Study: Development of children with an extra sex chromosome. The aim of this study is to find out whether children who have an extra X or Y chromosome experience any problems or difficulties during their childhood. |
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20-03-2008 Family Meeting Day on May, 17 in France. For families related to rare chromosomal anomalies. More information in French at www.valentin-apac.org |
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17-03-2008 KS&A Family Conference in Denver, Colorado, on August 8,9 and 10 of this year. Tracks for: XXY, Trisomy X and XYY Adults. Join for: Seminars, Clinic, Conversation and FUN! More details will follow. We'll keep you informed. Thea van de Velde and Ida Bakker |
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14-03-08 More articles and links in the Spanish section. |
11-03-2008 Now available: our Trisomy-X leaflet in easy to read Castellano (Spanish). |
11-03-2008 The second part of the story of Linda, written in october 2005 is translated into English now. Hope to translate part 3 soon. |
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07-03-2008 The addition of the Spanish Section. |
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07-03-2008 Study Shows Variety of Approaches Help Children Overcome Auditory Processing and Language Problems. Article published: 30-1-2008 A new study sponsored by the National Institute on Deafness and Other Communication Disorders (NIDCD). More info at: www.nih.gov |
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03-02-2008 Report: Triple X Study Day 30-9-2007 Oxford U.K. Written by a mother who attended this day. Twenty families from across the UK participated. |
Dr Ratcliffe Questionnaire Study – Findings 2006 Compiled by Helen Clements |
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KS&A Scientific Meeting in Dallas, Texas. |
18-01-2008 The World's leading website on learning disabilities, learning disorders and differences. Parents and teachers of learning disabled children will find authoritative guidance on attention deficit disorder, ADD / ADHD, dyslexia, dysgraphia, dyscalculia, dysnomia, reading difficulties, speech and related disorders. www.ldonline.org |
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16-01-2008 Tessa-Jade, a 2 year old XX/XXX girl who lives in New Sealand. Her grandmother wrote an update of her story. Click on the link below to read how she's doing. |
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09-01-2008 Triple X Syndrome - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers. by ICON Health Publications Published: Friday, July 20, 2007 More info at www.booksonboard.com |
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| Merry Christmas and a Happy New Year The Dutch Support Group wishes all visitors of this website a very special and warm 2008. We're gratefull for all the new contacts, our wonderful international friends and provided knowledge on XXX in the past year. |
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19-12-2007 Atlas of Genetic Diagnosis and Counseling: XXX Syndrome Publisher: Humana Press Pages: 1061-1063 Subject Collection: Medicine SpringerLink Date: Saturday, November 24, 2007 |
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18-12-2007 Family meeting day France, December 1th; A possibility to meet other people dealing with a sex chromosome anomaly was held , for the second time, in France. There were 52 participants, among them 13 children. There were no XXX participants. |
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17-10-2007 NIH study on twins (one or both having a sex chromosome variation) |
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28-9-2007 Next Sunday there will be an event for parents of XXX girls/young adolescents in Oxford, U.K. It's an opportunity to meet and attend presentations. Those who are interested in the programme and the list of speakers can ask a copy at this emailadress |
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| 25-9-2007 The N.I.H. study in Bethesda, Maryland is closed. There were 37 Triple X participants, the largest sample of these girls so far for an MRI study on the brain. Results will be published later this fall. We have been in contact with Jonathan Blumenthal and he gave us permission to publish the results of this study on our website. We will keep you informed. Thea van de Velde and Ida Bakker |
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New York City/Tri-State Regional Support Group Meeting on October 20, 2007 Click on the link below for more information. |
August 2007 You can find the report (so far only in Dutch, but we will translate it soon) and the photobook (click on the little picture) of our first Belgium Meeting Day can be found on: |
August 2007 Through the internet we met Martina. She lives in Vienna, in Austria and is the mother of a 3 year old daughter with Trisomy X. Martina is helping us with the German part of our website. So far she has corrected our German, wrote the story of her daughter Lydia and translated the stories of Linda and Fardau. |
July 2007 The story of Christine Christine (40) took part in the Denver study described in 47,XXX What's the prognoses. Click here to read her story |
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| July 2007 First Family meeting day in Belgium on August 26, 2007 Click here to read more |
| July 2007 N.I.H. study on Trisomy X by Jonathan Blumenthal in Bethesda, Maryland, USA Click here to read more about this study |
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| July 2007 Report: Family meeting day in The Netherlands, june 2007 Click here to read the report on the Family Meeting Day |
| July 2007 Report: Meeting Jill Balfour(KS&A) in Amsterdam, june 2007 Click here to read the report |
| June 29, 2007 The story of Rachel, born in 1988, dx at age 6 Rachel just graduated High School. Click here to read the story of Rachel. |
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| June 2007 New Triple-X study in the U.K. Click here to read more about this study. |
| May, 14 2007 New: Information leaflet in English; Diagnoses Triple-X, "What can be expected" Click here to download this information leaflet |
| March, April, May 2007 Complete renewal of the English part of our website There is much more information in English available now on www.triple-x-syndroom.nl/english |